DONATE TO TAMS
Please help us educate and support both people with mast cell diseases (MCD) including mastocytosis, MCAS and HaT, as well as health and medical practitioners. Many people with MCD are provided with limited correct information especially when trying to adjust to their diagnosis. We seek your help with fundraising and developing these resources to make a real difference to these people’s quality of life.
BECOME A MEMBER
TAMS is a volunteer-run, membership association. TAMS members receive discounts for TAMS conferences and events, member e-newsletters, online and face-to-face support groups and more.
The TAMS committee advocates on behalf of TAMS Members to the medical community and government.
NEED HELP?
TAMS receives a lot of emails, calls and messages from people seeking diagnosis and treatment for their mast cell diseases. We have put together some information to help you with your diagnosis and treatment journey. If you need support finding a specialist in your area, please contact us. You can also join our Patient Support Group on Facebook.
TAMS Research Fund
Since its inception in 2012, TAMS has championed national and international research into mast cell diseases. But we want to do more. The TAMS Research Advisory Committee is working to develop a research grants program, to fund specific post-grad studies into mast cell disorders.
We need your help to reach our target of $30,000. We have already raised $20,000, so we are calling on you to help us raise another $10,000.
All donations received via the TAMS Donation page between now and June 30 will be allocated to the TAMS Research Fund.
LATEST NEWS AND ALERTS
The curse of invisibility
By Sue Dickinson – TAMS Support Chair Have you ever wanted to disappear or become invisible when the ‘nasty masties’ are wreaking havoc on you? Or, on the flip side, do you wish that people would stop treating you as if you were not there, like you are invisible,...
Resources for the 2023 school year
TAMS recognises the multifaceted challenges many primary caregivers and children face at the beginning of the school year. As such, in addition to the mast cell diseases information on the TAMS website, and connecting with our online Patient and Carer’s Facebook...
Summer and mast cells
Many of us find heat and humidity to be a big trigger for our mast cell diseases. As we navigate summer with our mast cell conditions, it is important to plan ahead to help minimise your reactions to heat. TAMS committee member, Jess Perlibachas, has developed a...
TAMS Annual General Meeting
The TAMS Annual General Meeting will be held online on Sunday, 18 December 2022, 4–4:30 pm AEDT. Members are invited to join the AGM via Zoom, hear the reports of the past year and cast your vote on the committee for 2022/2023. Please register to attend our AGM on...
SpotOurSpots … in the news
Read our media coverage for Awareness Day 2022 Wollongong lit up purple for mastocytosis and mast cell diseases – Illawarra Mercury Goulburn Visitor Information Centre and Goulburn Soldiers Club light up purple – Goulburn Post Picture by Pro Sound and Lighting,...
Identifying International Patient Needs presentation
Watch the “Identifying International Patient Needs” presentation, filmed at The Mast Cell Disease Society, Inc’s 2022 Symposium.
ABOUT TAMS
The Australasian Mastocytosis Society (TAMS) has been created as an advocacy, education and support body for those throughout Australasia who suffer from or care for those with Mastocytosis or Mast Cell Activation Syndrome (MCAS). TAMS has been established due to the overwhelming need for sufferers and their supporters to find a local voice and active support network.
TAMS is an independent ‘not for profit’ incorporated organisation with a committed and functional volunteer committee of individuals – all of whom are sufferers or carers – ensuring your needs will be met.
TAMS Support
We provide a network of support for patients living with mast cell disorders including Systemic Mastocytosis, Cutaneous Mastocytosis and Mast Cell Activation Syndrome (MCAS) and their carers.
TAMS runs free monthly online support groups for members and potential members.
Visit our Facebook Events page for registration information.
Do you suffer from Mastocytosis or MCAD? Join the Australasian Mastocytosis and MCAD Facebook Support Group.
Carers are invited to join the Mastocytosis Australasia Carers Facebook Support Group.
We connect patients
to medical practitioners and specialists with knowledge of Mastocytosis and MCAS.
We link worldwide
with associations to collectively gather research data, share resources and knowledge for greater understanding, treatment practices, medications, improved health outcomes and raising awareness globally.
