DONATE TO TAMS
Please help us educate and support both people with mast cell diseases (MCD) including mastocytosis, MCAS and HaT, as well as health and medical practitioners. Many people with MCD are provided with limited correct information especially when trying to adjust to their diagnosis. We seek your help with fundraising and developing these resources to make a real difference to these people’s quality of life.
BECOME A MEMBER
TAMS is a volunteer-run, membership association. TAMS members receive discounts for TAMS conferences and events, member e-newsletters, online and face-to-face support groups and more.
The TAMS committee advocates on behalf of TAMS Members to the medical community and government.
NEED HELP?
TAMS receives a lot of emails, calls and messages from people seeking diagnosis and treatment for their mast cell diseases. We have put together some information to help you with your diagnosis and treatment journey. If you need support finding a specialist in your area, please contact us. You can also join our Patient Support Group on Facebook.
LATEST NEWS AND ALERTS
A dollar makes a difference for MCDs
Did you know that you can support TAMS with just $1 on PayPal? Select TAMS as your “favourite charity” on PayPal and give $1 at checkout when making regular PayPal payments without any ongoing commitments, automatic deductions or fees.
Clinical trials in Australia
TAMS will bring you information as it becomes available on upcoming clinical trials in Australia. Blueprint Medicines Corporation's HARBOR study Two Australian hospitals are taking part in Blueprint Medicines Corporation's HARBOR study – The Alfred Hospital in...
Interview with Professor Katelaris
In this interview, David Mayne asks Professor Katelaris some of the most common patient questions related to mast cell diseases (MCD).
Requesting fair access to medications: Template letters
As patients and carers alike, TAMS is acutely aware of the wide variety of medications needed for the daily management of Mast Cell Diseases which are not readily accessible, and/or not on the Pharmaceutical Benefits Scheme (PBS) / Pharmaceutical Schedule (NZ), for...
The curse of invisibility: Wrap-up
By Sue Dickinson – TAMS Support Chair At our most recent meeting on Saturday, 25 March 2023, a group of nine members engaged in a positive discussion about the impact of our invisible illness upon ourselves and those around us. Our session was longer than...
The curse of invisibility
By Sue Dickinson – TAMS Support Chair Have you ever wanted to disappear or become invisible when the ‘nasty masties’ are wreaking havoc on you? Or, on the flip side, do you wish that people would stop treating you as if you were not there, like you are invisible,...
TAMS Research Fund
Since its inception in 2012, TAMS has championed national and international research into mast cell diseases. But we want to do more. The TAMS Research Advisory Committee is working to develop a research grants program, to fund specific post-grad studies into mast cell disorders.
We need your help to reach our target of $30,000. We have already raised $20,000, so we are calling on you to help us raise another $10,000.
All donations received via the TAMS Donation page between now and June 30 will be allocated to the TAMS Research Fund.
ABOUT TAMS
The Australasian Mastocytosis Society (TAMS) has been created as an advocacy, education and support body for those throughout Australasia who suffer from or care for those with Mastocytosis or Mast Cell Activation Syndrome (MCAS). TAMS has been established due to the overwhelming need for sufferers and their supporters to find a local voice and active support network.
TAMS is an independent ‘not for profit’ incorporated organisation with a committed and functional volunteer committee of individuals – all of whom are sufferers or carers – ensuring your needs will be met.
TAMS Support
We provide a network of support for patients living with mast cell disorders including Systemic Mastocytosis, Cutaneous Mastocytosis and Mast Cell Activation Syndrome (MCAS) and their carers.
TAMS runs free monthly online support groups for members and potential members.
Visit our Facebook Events page for registration information.
Do you suffer from Mastocytosis or MCAD? Join the Australasian Mastocytosis and MCAD Facebook Support Group.
Carers are invited to join the Mastocytosis Australasia Carers Facebook Support Group.
We connect patients
to medical practitioners and specialists with knowledge of Mastocytosis and MCAS.
We link worldwide
with associations to collectively gather research data, share resources and knowledge for greater understanding, treatment practices, medications, improved health outcomes and raising awareness globally.
