TAMS

Support, Education, Research and Advocacy for mast cell disorder patients, physicians, families & caregivers.

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TAMS is an association that is designed to provide education, awareness, advocacy, support and research for those living with a rare mast cell disorder (MCAS) called Mastocytosis. We are not for profit, operating by the efforts of volunteers who either suffer or care for someone with the condition.

Donate to TAMS and help raise money for research, education, support and advocacy.

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BECOME A MEMBER

TAMS is a volunteer-run, membership association. TAMS members receive discounts for TAMS conferences and events, member e-newsletters, online and face-to-face support groups and more.

The TAMS committee advocates on behalf of TAMS Members to the medical communication and government.

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2019 CONFERENCE

The annual TAMS Conference has been running since 2012. Our Conferences feature many speakers and workshops on dealing with mastocytosis and MCAD and provide delegates with the opportunity to meet others in a relaxed and friendly environment.

Our 2019 TAMS Conference was held 27-29 September in Canberra. 

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20 OCTOBER 2019

ABOUT US

The Australasian Mastocytosis Society (TAMS) has been created as an advocacy, education and support body for those throughout Australasia who suffer from or care for those with Mastocytosis or Mast Cell Activation Syndrome (MCAS). TAMS has been established due to the overwhelming need for sufferers and their supporters to find a local voice and active support network.

TAMS is an independent ‘not for profit’ incorporated organisation with a committed and functional volunteer committee of individuals – all of whom are sufferers or carers – ensuring your needs will be met.

 

WHAT WE DO

PROVIDE A NETWORK

of support for patients living with mast cell disorders including Systemic Mastocytosis, Cutaneous Mastocytosis and Mast Cell Activation Syndrome (MCAS) and their carers.

 

CONNECT PATIENTS

to medical practitioners and specialists with knowledge of Mastocytosis and MCAS.

 

LINK WORLDWIDE

with associations to collectively gather research data, share resources and knowledge for greater understanding, treatment practices, medications and improved health outcomes.

OUR VISION

Through the building of strong relationships and a greater knowledge base, expand TAMS in geographical and intellectual areas to better support an ever-expanding database of sufferers, their supporters and clinicians.

MASTOCYTOSIS

Mastocytosis has been defined as an abnormal accumulation of mast cells in one or more organ systems. Previously classified by the World Health Organization (WHO) as a myeloproliferative neoplasm, mastocytosis is now classified in its own category under myeloid neoplasms. Broadly separated into three categories, cutaneous mastocytosis (CM), systemic mastocytosis (SM) and mast cell sarcoma. These diseases occur in both children and adults.

 

CHILDREN WITH MASTOCYTOSIS

The most common form of mastocytosis in children is cutaneous mastocytosis (CM), accounting for approximately 90 percent of mastocytosis cases in this age group. The prognosis is excellent for children with CM who have onset of skin lesions within the first two years of life (most children) as spontaneous resolution or improvement is common after several years. CM that develops after the age of two years tends to persist.

MAST CELL ACTIVATION SYNDROME (MCAS)

There is an existence of a subset of mast cell disorder patients who experience episodes of mast cell activation without detectable evidence of a proliferative mast cell disorder. Some patients who exhibit symptoms of mast cell mediator release do not fulfil the criteria for SM. Diagnosis requires consistent symptoms, reported benefit with medications and diagnostic evidence of excess mast cells in tissue biopsies or abnormal mast cell mediators in blood or urine tests. This is referred to as Mast Cell Activation Syndrome (MCAS).

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