TAMS

Support, Education, Research and Advocacy for mast cell disorder patients, physicians, families & caregivers.

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DONATE TO TAMS

Please contribute to helping us educate and support both people with Masto, and the treating health and medical practitioners. Many people with Masto are provided with limited correct information especially when trying to adjust to their diagnosis. We seek your help with fundraising and developing these resources to make a real difference to these people’s quality of life.

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BECOME A MEMBER

TAMS is a volunteer-run, membership association. TAMS members receive discounts for TAMS conferences and events, member e-newsletters, online and face-to-face support groups and more.

The TAMS committee advocates on behalf of TAMS Members to the medical communication and government.

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NEED HELP?

TAMS receives a lot of emails, calls and messages from people seeking diagnosis and treatment for their mast cell illness. A lot of these ask the same questions, so we have put together some information to help you on your diagnosis and treatment journey.

 

READ OUR 'NEED HELP' PAGE

LATEST CAMPAIGNS

#SpotOurSpots for Mastocytosis and MCAS is lighting up Australia

On October 20, International Mastocytosis and Mast Cell Diseases Awareness Day, 58 landmarks and venues across Australia lit up to raise awareness of Mastocytosis and Mast Cell Diseases.

Share your mastocytosis or mast cell activation syndrome experiences

TAMS Research Committee and Dr Jason Fok are proud to have conducted the first official TAMS research survey. Thank you to everyone who completed the survey. Results will be releases 2021.

ABOUT TAMS

The Australasian Mastocytosis Society (TAMS) has been created as an advocacy, education and support body for those throughout Australasia who suffer from or care for those with Mastocytosis or Mast Cell Activation Syndrome (MCAS). TAMS has been established due to the overwhelming need for sufferers and their supporters to find a local voice and active support network.

TAMS is an independent ‘not for profit’ incorporated organisation with a committed and functional volunteer committee of individuals – all of whom are sufferers or carers – ensuring your needs will be met.

 

TAMS Support

We provide a network of support for patients living with mast cell disorders including Systemic Mastocytosis, Cutaneous Mastocytosis and Mast Cell Activation Syndrome (MCAS) and their carers.

TAMS runs free monthly online support groups for members and potential members. 
Visit our Facebook Events page for registration information.

Do you suffer from Mastocytosis or MCAD? Join the Australasian Mastocytosis and MCAD Facebook Support Group.

Carers are invited to join the Mastocytosis Australasia Carers Facebook Support Group.

 

We connect patients

to medical practitioners and specialists with knowledge of Mastocytosis and MCAS.

 

We link worldwide

with associations to collectively gather research data, share resources and knowledge for greater understanding, treatment practices, medications, improved health outcomes and raising awareness globally.

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LATEST NEWS AND ALERTS

Awareness Day 2020 media coverage

Oct 19, 2020

TAMS and our 2020 #SpotOurSpot campaign featured in the following publications:    Glasshouse to shine purple for mast cell disease awareness, Port Macquarie News Raising awareness of Mastocytosis, Mast Cell Diseases, Canberra Weekly Canberra sports purple spots for...

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OUR VISION

Through the building of strong relationships and a greater knowledge base, expand TAMS in geographical and intellectual areas to better support an ever-expanding database of sufferers, their supporters and clinicians.

MASTOCYTOSIS

Mastocytosis has been defined as an abnormal accumulation of mast cells in one or more organ systems. Previously classified by the World Health Organization (WHO) as a myeloproliferative neoplasm, mastocytosis is now classified in its own category under myeloid neoplasms. Broadly separated into three categories, cutaneous mastocytosis (CM), systemic mastocytosis (SM) and mast cell sarcoma. These diseases occur in both children and adults.

 

CHILDREN WITH MASTOCYTOSIS

The most common form of mastocytosis in children is cutaneous mastocytosis (CM), accounting for approximately 90 percent of mastocytosis cases in this age group. The prognosis is excellent for children with CM who have onset of skin lesions within the first two years of life (most children) as spontaneous resolution or improvement is common after several years. CM that develops after the age of two years tends to persist.

MAST CELL ACTIVATION SYNDROME (MCAS)

There is an existence of a subset of mast cell disorder patients who experience episodes of mast cell activation without detectable evidence of a proliferative mast cell disorder. Some patients who exhibit symptoms of mast cell mediator release do not fulfil the criteria for SM. Diagnosis requires consistent symptoms, reported benefit with medications and diagnostic evidence of excess mast cells in tissue biopsies or abnormal mast cell mediators in blood or urine tests. This is referred to as Mast Cell Activation Syndrome (MCAS).

CELEBRATE ON 20 OCTOBER ANNUALLY 

#SPOTOURSPOTS in 2020