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About TAMS

Find out how TAMS can help you in your mast cell journey.

TAMS

TAMS. The Australasian Mast Cell Activation Disorder Society, formerly The Australasian Mastocytosis Society, founded in 2011, provides connection, advocacy, research, education, and support for individuals diagnosed with mast cell activation disorders (MCADs), including all variants of mastocytosis and subtypes of mast cell activation syndrome (MCAS), as well as for their parents and carers.

TAMS links patients, carers, and clinicians; represents the needs of the MCAD community to improve recognition, access to care and treatment options; collaborates with specialists, allied health professionals, organisations and businesses worldwide to share knowledge and advance research; raises awareness and understanding among patients, practitioners and the public; and empowers individuals and families to navigate their condition and improve quality of life.

TAMS’ three founding members are David Mayne, Claire Ellis and Kristin Sinclair, who in 2011-12 acted upon their desire for support, education, research and advocacy within Australasia for mastocytosis (and later MCAS) patients and their families, and established TAMS.

TAMS Patient Brochure
TAMS Working with Pharmaceutical Companies Policy

TAMS brochure citations

  1. Australasian Society of Clinical Immunology and Allergy (ASCIA). Position Paper – Diagnosis and Investigation of Mast Cell Activation Disorders and Syndrome.
  2. Systemic Mastocytosis in Adults: 2026 Update on Diagnosis, Risk Stratification and Management
  3. Diagnosis and Management of Patients With Mast Cell Activation Syndromes: Status 2026

What our community is saying

“TAMS is my Aussie Masto family where we learn everything there is about this rare disease. My family wouldn’t be where we are without them. And we have made many friendships over the years by going along to our Conferences and to help raise awareness.”

 

Aimee & Savannah (DMM-UP)