Facebook Pixel

OUR COMMITTEE

Meet the TAMS Committee

David Mayne

David Mayne

Chair and Founding Member

As a Management educator and organisational communicator, I believe initiating TAMS was a natural progression since my ‘long haul’ diagnosis. I hope the skills, knowledge and the contacts I have obtained and share will help others find some peace and relief from this wretched and unpredictable disease.
Kristin Sinclair

Kristin Sinclair

Vice Chair, Treasurer, Membership and Founding Member

Since my diagnosis with Aggressive Systemic Mastocytosis at 25 in 2003, I have craved connection with other people who understand the inconsistencies and challenges of mast cell disease. I believe isolation and lack of support are some of the biggest problems people can encounter with this illness (outside of the actual symptoms), and I co-founded TAMS with David and Claire Ellis, to help address this. Outside of TAMS, I run my own online consulting business from home (which suits my Masto). I live south of Wollongong with my husband David and my two retired greyhounds, Lilly and Alfie, who provide continual love and support.
Heather Mayne

Heather Mayne

Secretary, Public Officer, Conference Chair

I’m a carer for my husband David who has both Cutaneous and Systemic Mastocytosis. I naturally took on Secretary and Public Officer role when the association was formed as we both share a passion for bringing about positive outcomes for others in similar predicaments in Australia, New Zealand and South East Asia. My dream is to ‘Connect the Dots’ across the globe, bringing specialists together to share knowledge, undertake research and find answers to the many questions that arise from managing ‘temperamental’ mast cells. My other life is as a full-time Early Childhood teacher and hobby farmer on weekends. Life is never dull.
Sue Dickinson

Sue Dickinson

Ordinary Member, Support Group Chair

I joined the TAMS Committee at our inaugural conference in Port Macquarie in 2012, and currently, occupy the position of Support Group Chair.  I was diagnosed with Systemic Mastocytosis in 2005, following many years of unexplained illness.  I could not believe my luck when I found out that there was support available in Australia from a newly formed group called TAMS.  I have two adult daughters. I worked as a Clinical Social Worker for the 40 years. My main interests are the performing arts and I am a founding member of a Community Theatre group in Coffs Harbour (1984).  I live with my husband, Jeff, in Coramba village near Coffs Harbour, on the NSW mid-North Coast.  I devote my spare time to our two border collies, Millie and Jess. They are wonderful supports when my world seems totally controlled by the ‘nasty masties’.
Jess Perlibachas

Jess Perlibachas

Ordinary Member, Advocacy and Awaremess Chair

I was diagnosed with Systemic Mastocytosis (SM) in 2018. Due to comorbidities complicating things, management of my SM is still a work in progress. My journey to diagnosis has highlighted how limited the understanding of Mastocytosis and other Mast Cell diseases is in the broader Australian community. I proudly joined the TAMS Committee in 2019. I continue to be excited to work on advocacy, awareness, moderating the TAMS Facebook group and fundraising activities, increasing the understanding of the impacts of all Mast Cell diseases, and what TAMS can do to help those affected through greater community awareness and support.

Melinda Park

Melinda Park

Ordinary Member

I was diagnosed with Indolent Systemic Mastocytosis at age 37 after presenting with a rash to various doctors for over a year. I ‘googled’  looking for answers and felt very alone until I found the Australasian Mastocytosis Facebook page in 2009. After my first visit to hospital with an episode, I made some lifestyle changes including reducing stress, and changing my diet and exercise. I have worked for 30 years as a Graphic Designer in advertising, printing and in private companies around Brisbane. I enjoy hiking, photography and gardening. I’m grateful to be part of the TAMs community and will contribute as much as I can to ensure this valuable support exists well into the future.

Share This