Chair and Founding Member
Vice Chair, Treasurer, Membership and Founding Member
Since my diagnosis with Aggressive Systemic Mastocytosis at 25 in 2003, I have craved connection with other people who understand the inconsistencies and challenges of mast cell disease. I believe isolation and lack of support are some of the biggest problems people can encounter with this illness (outside of the actual symptoms), and I co-founded TAMS to help address this. Outside of TAMS, I run my own online consulting business from home (which suits my Masto). I live south of Wollongong with my husband and my three fur babies, who provide continual love and support.
Secretary, Public Officer, Conference Chair
Support Group Chair
I joined the TAMS Committee at our inaugural conference in Port Macquarie in 2012, and currently, occupy the position of Support Group Chair. I was diagnosed with Systemic Mastocytosis in 2005, following many years of unexplained illness. I could not believe my luck when I found out that there was support available in Australia from a newly formed group called TAMS. I have two adult daughters and have worked continuously as a Clinical Social Worker for the past 39 years. I currently work as a School Counsellor in a Primary School setting. My main interests are the performing arts and I am a founding member of a Community Theatre group in Coffs Harbour (1984). I live with my husband, Jeff, in Coramba village near Coffs Harbour, on the NSW mid-North Coast. I devote my spare time to our two border collies, Millie and Jess. They are wonderful supports when my world seems totally controlled by the ‘nasty masties’.