TAMS regularly reviews its resources and content to ensure we continue meeting the evolving needs of our community. We have recently launched a new survey focused on the diagnostic experiences of people living with MCADs, including which tests you have undergone, what diagnostic criteria were used and whether your practitioner identified a specific subtype of MCAS or variant of mastocytosis.
We are also seeking to better understand which practitioners have been most helpful in your journey and where further support may still be needed. Please consider sharing our dedicated practitioner survey with your doctor using our template email (clicking the link will download the template email as a Microsoft Word file).
By sharing your experience and encouraging your practitioner to engage with TAMS, you can help us identify current gaps, highlight effective diagnostic pathways and tailor future resources to meet the real-world needs of our community.
