Questions to ask your doctor 


Talking often with the doctor is important to make informed decisions about your health care. These suggested questions are a starting point to help you learn more about your care and treatment. You are also encouraged to ask additional questions that are important to you.

  • What type of mastocytosis do I have?
  • Can you explain my pathology report (laboratory test results) to me?
  • Should I be tested for the c-kit mutation?
  • How can I avoid symptoms appearing?
  • What are my treatment options?
  • What clinical trials are open to me?
  • What treatment, or combination of treatments, do you recommend? Why?
  • What is the goal of this treatment plan?
  • What are the possible short-term and long-term side effects of each treatment?
  • Who will be part of my health care team, and what does each member do?
  • Who will be coordinating my overall treatment and follow-up care?
  • How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
  • If I’m worried about managing the costs related to my medical care, who can help me with these concerns?
  • How long will it take to heal?
  • What is the likelihood that mastocytosis will come back?
  • Are there other lesions that should be biopsied?
  • Are there medications that I should avoid?
  • What is my prognosis (chance of recovery)?
  • What follow-up tests will I need, and how often will I need them?
  • What support services are available to me? To my family?


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