Talking often with the doctor is important to make informed decisions about your health care. These suggested questions are a starting point to help you learn more about your care and treatment. You are also encouraged to ask additional questions that are important to you.
- What type of mastocytosis do I have?
- Can you explain my pathology report (laboratory test results) to me?
- Should I be tested for the c-kit mutation?
- How can I avoid symptoms appearing?
- What are my treatment options?
- What clinical trials are open to me?
- What treatment, or combination of treatments, do you recommend? Why?
- What is the goal of this treatment plan?
- What are the possible short-term and long-term side effects of each treatment?
- Who will be part of my health care team, and what does each member do?
- Who will be coordinating my overall treatment and follow-up care?
- How will this treatment affect my daily life? Will I be able to work, exercise, and perform my usual activities?
- If I’m worried about managing the costs related to my medical care, who can help me with these concerns?
- How long will it take to heal?
- What is the likelihood that mastocytosis will come back?
- Are there other lesions that should be biopsied?
- Are there medications that I should avoid?
- What is my prognosis (chance of recovery)?
- What follow-up tests will I need, and how often will I need them?
- What support services are available to me? To my family?
More information
- The Mast Cell Disease Society Inc.
- Mastocytosis and Mast Cell Diseases Awareness Day
- UK Masto
- Masto Kids
