Immediate action required for equitable access to rare disease treatments
TAMS urges our community and their families to contact their local MPs and Senators to support urgent reform of Australia’s Health Technology Assessment (HTA) system. The HTA system determines whether medicines receive public funding, including through the...
Help shape Australian-led mast cell activation disorder (MCAD) research today
The TAMS Committee is proud to invite our eligible community members to participate in a meaningful Australian-led research project directed by Jackson Rees, a Master of Genomics and Health student at the University of Melbourne, with assistance from TAMS. This...
April holidays: A practical guide to staying safe and communicating your needs
April often brings a range of celebrations and gatherings, including Easter and school holiday events. While these occasions can be meaningful opportunities to connect with family and friends, they can also present additional challenges for people living with mast...
Valentine’s Day with an MCAD
For those who celebrate Valentine’s Day, it is often wrapped up in good intentions, but for people living with mast cell activation disorders (MCADs), and for those who love them, those intentions can sometimes come with hidden challenges. A partner or new date...
Videos: Expert interviews on mast cell activation disorders
As a member of the International Mastocytosis and Mast Cell Diseases Awareness Day Committee, The Australian Mastocytosis Society (TAMS) is pleased to share a new expert interview series developed as part of last year’s Awareness Day sponsorship activities. These...
Webinar: Managing eye discomfort in mast cell activation disorders
Special guests: Ashleigh Peters of Wollongong City Optical Date: 25 February 2026Time: 12 PM (AEDT)Location: Zoom (link will be sent 48 hours before the event) *Live attendance fee: $3 for members $7.30 for non-members *Attendants will receive a recording of the event...
TAMS Annual General Meeting 2025 and special resolution
This is to advise you of the upcoming Annual General Meeting of the membership of TAMS. The details of this meeting are as follows: Date: Tuesday, 16 December 2025 Time: 4:30 – 5 pm AEDT Place: Zoom (online only, no proxies) (TAMS Members will be emailed a Zoom link)...
Reflecting on the 2025 International Mastocytosis & Mast Cell Diseases Awareness Day
On 20 October, people around the world came together for International Mastocytosis & Mast Cell Diseases Awareness Day, united under the theme “Be informed, Be connected.” The campaign brought patients, carers, medical professionals and advocates together to raise...
Be informed, be connected: Ways to get involved this October in Australia
Don't forget to mark 20 October in your diary for Awareness Day. To participate in this year’s International Mastocytosis and Mast Cell Diseases Awareness Day (Awareness Day) campaign on October 20 and beyond, themed Be informed, be connected, and help foster hope,...
Upcoming webinars: October & November 2025
October and November 2025: Register for our upcoming MCADs webinars in collaboration with Active Health Clinic TAMS is pleased to announce two special webinars in collaboration with Active Health Clinic, a clinic offering a wide range of services including dietetics,...
Help TAMS improve pre- and post-diagnostic support
TAMS regularly reviews its resources and content to ensure we continue meeting the evolving needs of our community. We have recently launched a new survey focused on the diagnostic experiences of people living with MCADs, including which tests you have undergone, what...
Help TAMS grow our impact this EOFY
As we approach the end of the financial year, we ask our valued community to help TAMS reach important goals in our shared mission to improve care, clarity and connection for people living with mast cell activation disorders (MCADs), such as mastocytosis and MCAS....
Requesting fair access to medications: Template letters
Originally published 19 April 2023, updated 12 June 2025 As patients and carers alike, TAMS is acutely aware of the wide variety of medications needed for the daily management of mast cell activation disorders (MCADs) which are not readily accessible, and/or not...
Systemic mastocytosis webinar: “Are we speaking the same language?”
Did you miss attending RARE Revolution Magazine’s special online conversation about Systemic Mastocytosis this week? Sponsored by Blueprint Medicines, the session was moderated by the magazine’s editor and featured Dr Deepti Radia, a systemic mastocytosis...
Systemic Mastocytosis edition of RARE Revolution Magazine
Learn more about systemic mastocytosis (SM) in the latest spotlight edition of RARE Revolution Magazine, sponsored by Blueprint Medicines. Take a look at the complexities and impact of systemic mastocytosis as well as the dramatic revolution of the systemic...















