Famotidine and Nizatidine Shortages 2023
This is an alert regarding Famotidine and Nizatidine, now both listed on the Therapeutic Goods Administration (TGA) Medicine Shortage Reports Database (the Database). All Famotidine is currently listed as "Unavailable” with an anticipated return-to-market date of 29...
Mental Olympics: TAMS June Support Meeting wrap-up
At our June Support meeting on 24 June 2023, we discussed the challenges faced with management of our chronic illness, using the analogy of athletes preparing for the Olympics. In order to progress, an athlete can be faced with setbacks as they commence training for...
Mental Olympics: June 2023 online support group
Living with a chronic illness can feel like we are always at the beginning, both physically and mentally. No matter how many times we think we have prepared for a flare of our illness, it can seem like we have achieved little progress or improvement in the management...
A dollar makes a difference for MCDs
Did you know that you can support TAMS with just $1 on PayPal? Select TAMS as your “favourite charity” on PayPal and give $1 at checkout when making regular PayPal payments without any ongoing commitments, automatic deductions or fees. You and anyone else who joins...
Clinical trials in Australia
TAMS will bring you information as it becomes available on upcoming clinical trials in Australia. Blueprint Medicines Corporation's HARBOR study Two Australian hospitals are taking part in Blueprint Medicines Corporation's HARBOR study – The Alfred Hospital in...
Interview with Professor Katelaris
TAMS Chair David Mayne recently interviewed Professor Connie Katelaris. In this interview, David Mayne asks Dr Katelaris some of the most common patient questions related to MCD, including what tests a GP can do to support a patient under investigation for a mast cell...
Requesting fair access to medications: Template letters
As patients and carers alike, TAMS is acutely aware of the wide variety of medications needed for the daily management of Mast Cell Diseases which are not readily accessible, and/or not on the Pharmaceutical Benefits Scheme (PBS) / Pharmaceutical Schedule (NZ), for...
The curse of invisibility: Wrap-up
By Sue Dickinson – TAMS Support Chair At our most recent meeting on Saturday, 25 March 2023, a group of nine members engaged in a positive discussion about the impact of our invisible illness upon ourselves and those around us. Our session was longer than...
The curse of invisibility
By Sue Dickinson – TAMS Support Chair Have you ever wanted to disappear or become invisible when the ‘nasty masties’ are wreaking havoc on you? Or, on the flip side, do you wish that people would stop treating you as if you were not there, like you are invisible,...
Resources for the 2023 school year
TAMS recognises the multifaceted challenges many primary caregivers and children face at the beginning of the school year. As such, in addition to the mast cell diseases information on the TAMS website, and connecting with our online Patient and Carer’s Facebook...
Summer and mast cells
Many of us find heat and humidity to be a big trigger for our mast cell diseases. As we navigate summer with our mast cell conditions, it is important to plan ahead to help minimise your reactions to heat. TAMS committee member, Jess Perlibachas, has developed a...
TAMS Annual General Meeting
The TAMS Annual General Meeting will be held online on Sunday, 18 December 2022, 4–4:30 pm AEDT. Members are invited to join the AGM via Zoom, hear the reports of the past year and cast your vote on the committee for 2022/2023. Please register to attend our AGM on...
SpotOurSpots … in the news
Read our media coverage for Awareness Day 2022 Wollongong lit up purple for mastocytosis and mast cell diseases – Illawarra Mercury Goulburn Visitor Information Centre and Goulburn Soldiers Club light up purple – Goulburn Post Picture by Pro Sound and Lighting,...
Identifying International Patient Needs presentation
As part of International Mastocytosis & Mast Cell Awareness Day, The Mast Cell Disease Society, Inc. (TMS) is sharing this presentation from its 2022 Patient & Provider Symposium, which was held last weekend. The core author group of the recently published...
SpotOurSpots for Mastocytosis and Mast Cell Diseases is lighting up Australia and New Zealand
20 October 2022 marks the 5th International Mastocytosis & Mast Cell Diseases Awareness Day. On 20 October over 150 landmarks and venues across Australia and New Zealand will light up purple to raise awareness of Mastocytosis and Mast Cell Diseases – a broad...