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LATEST NEWS AND ALERTS

Good Grief Part 1: Wrap up

Good Grief Part 1: Wrap up

Join us for Part 2 on 9 DecPhoto by Aleksandr Ledogorov on UnsplashAt our Support meeting on Sunday, 24 November, it was acknowledged that our emotional state can have an effect on our illness, and vice versa. This can be positive or negative. Some members felt that...

Good Grief

Good Grief

Part 1: Anatomy and physiology of griefIllustration: Charlie Brown by leonardocharra (Creative Commons)Grief is a complex emotional response to loss, and its anatomy and physiology involve a combination of psychological, neurological and physiological processes....

Famotidine and Nizatidine Shortages 2023

Famotidine and Nizatidine Shortages 2023

This is an alert regarding Famotidine and Nizatidine, now both listed on the Therapeutic Goods Administration (TGA) Medicine Shortage Reports Database (the Database). All Famotidine is currently listed as "Unavailable” with an anticipated return-to-market date of 29...

Mental Olympics: TAMS June Support Meeting wrap-up

Mental Olympics: TAMS June Support Meeting wrap-up

At our June Support meeting on 24 June 2023, we discussed the challenges faced with management of our chronic illness, using the analogy of athletes preparing for the Olympics. In order to progress, an athlete can be faced with setbacks as they commence training for...

Mental Olympics: June 2023 online support group

Mental Olympics: June 2023 online support group

Living with a chronic illness can feel like we are always at the beginning, both physically and mentally. No matter how many times we think we have prepared for a flare of our illness, it can seem like we have achieved little progress or improvement in the management...

A dollar makes a difference for MCDs

A dollar makes a difference for MCDs

Did you know that you can support TAMS with just $1 on PayPal? Select TAMS as your “favourite charity” on PayPal and give $1 at checkout when making regular PayPal payments without any ongoing commitments, automatic deductions or fees. You and anyone else who joins...

Clinical trials in Australia

Clinical trials in Australia

  TAMS will bring you information as it becomes available on upcoming clinical trials in Australia. Cogent Summit Non-Advanced Systemic Mastocytosis clinical trial Summit Clinical Trial Site: Royal Prince Alfred Hospital, Camperdown, NSWPrimary...

Interview with Professor Katelaris

Interview with Professor Katelaris

TAMS Chair David Mayne recently interviewed Professor Connie Katelaris. In this interview, David Mayne asks Dr Katelaris some of the most common patient questions related to MCD, including what tests a GP can do to support a patient under investigation for a mast cell...

Requesting fair access to medications: Template letters

Requesting fair access to medications: Template letters

As patients and carers alike, TAMS is acutely aware of the wide variety of medications needed for the daily management of Mast Cell Diseases which are not readily accessible, and/or not on the Pharmaceutical Benefits Scheme (PBS) / Pharmaceutical Schedule (NZ), for...

The curse of invisibility: Wrap-up

The curse of invisibility: Wrap-up

​By Sue Dickinson – TAMS Support Chair At our most recent meeting on Saturday, 25 March 2023, a group of nine members engaged in a positive discussion about the impact of our invisible illness upon ourselves and those around us. Our session was longer than...

The curse of invisibility

The curse of invisibility

​By Sue Dickinson – TAMS Support Chair Have you ever wanted to disappear or become invisible when the ‘nasty masties’ are wreaking havoc on you? Or, on the flip side, do you wish that people would stop treating you as if you were not there, like you are invisible,...

Resources for the 2023 school year

Resources for the 2023 school year

TAMS recognises the multifaceted challenges many primary caregivers and children face at the beginning of the school year. As such, in addition to the mast cell diseases information on the TAMS website, and connecting with our online Patient and Carer’s Facebook...

Summer and mast cells

Summer and mast cells

Many of us find heat and humidity to be a big trigger for our mast cell diseases. As we navigate summer with our mast cell conditions, it is important to plan ahead to help minimise your reactions to heat. TAMS committee member, Jess Perlibachas, has developed a...

TAMS Annual General Meeting

TAMS Annual General Meeting

The TAMS Annual General Meeting will be held online on Sunday, 18 December 2022, 4–4:30 pm AEDT. Members are invited to join the AGM via Zoom, hear the reports of the past year and cast your vote on the committee for 2022/2023. Please register to attend our AGM on...

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