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EDUCATION WEBINARS

2024 patient education

2024 education dates will be announced in early 2024.

TAMS members have on-demand access to past recordings, with access sent in our member newsletter and member welcome letter. Contact TAMS for more information.

TAMS Member Support and Education in 2024

Thanks to all who completed our survey about a potential conference this year. We greatly appreciate your valuable feedback.

After weighing all your feedback, we’ve decided that an in-person event isn’t on the cards for 2024. We get it – health concerns, travel costs, rising COVID-19 cases and the general cost of living are real considerations. So, we’re sticking with our online program for this year. We also heard you about the full-day online sessions being a bit much, so we’re mixing it up with several shorter online education events throughout the year. We might revisit face-to-face gatherings later in the year, so stay tuned for updates.

We will announce our upcoming education program soon.

We will be holding our first online support group from 4 – 5.30 pm on Saturday, 2 March. It’s your chance to let us know what you want from our support program this year – both formally and informally.

Register to attend our 2 March, and brainstorm the evolution of our TAMS support program in 2024. Looking forward to connecting with you all!

Additional 2024 dates will be announced after our March support meeting.

 

Interview with Professor Katelaris

Watch TAMS Chair David Mayne’s recent interview with Professor Connie Katelaris.

In this interview, David Mayne asks Professor Katelaris some of the most common patient questions related to MCD, including what tests a GP can do to support a patient under investigation for a mast cell disease and how to approach a GP if you think you have Mastocytosis or MCAS. Professor Katelaris also shares her insights into the bucket theory with MCD and how to prepare for new medications and tests.

Past TAMS educational webinars – member-only access

TAMS’ past education webinars are available to watch for TAMS Members. Become a TAMS member to access the recordings.

If you are a TAMS member, please email info@mastocytosis.org.au to request the individual link and password for each webinar recording. (Please note the login for this website does not access these videos – it is for donation management)

Webinar recording access info will be sent in the member e-newsletter following a webinar (e.g., Dr McComish’s will be sent in our September e-newsletter).

Gastrointestinal management of MCAS

Saturday, 28 October 2023

Queensland Gastroenterologist and Hepatologist, Dr. Rebecca Ryan, presented a webinar on topics such as MCAS and the gut-brain axis, how gut-related reactions can present elsewhere in the body, MCAS gastroenterological investigations and management strategies. The session concluded with a live Q&A, offering participants an opportunity to engage with a specialist in gastrointestinal MCAS management.

Patients’ needs presentation, TMS Annual Summit

Saturday, 22 October 2022, 4–5 pm AEDT (in recognition of Awareness Day)

In 2020, 13 patient advocacy groups from around the world collected the top ten needs and concerns of patients with Mastyctosis and MCAS. We worked for over two years to analyse the collective data about patient needs and together published an important paper in JACI in Practice, Vol. 10 Issue 8.

At the October TMS Conference, the core author group spoke on the paper and its key results and proposed solutions:

  • Valerie Slee, RN, BSN, The Mast Cell Disease Society, Inc. (TMS), Board Chair
  • Susan Jennings, TMS, Research Co-Chair
  • Jess Hobart, The UK Mastocytosis Support Group, Co-Chair
  • Kristin Sinclair, The Australasian Mastocytosis Society (TAMS), Vice Chair, Treasurer, Membership and Co-founder
  • Mercedes Martin, Spanish Association of Mastocytosis and Related Diseases, Scientific Advisor
  • Celeste Finnerty, The Mast Cell Disease Society, Vice Chair for Research; Co Chair, Research Committee; Support Group Leader

Watch a replay of this presentation.

Emerging treatments targeting mast cells and mediators with Dr Jeremy McComish

Saturday, 27 August 2022, 4–5 pm AEST
Dr Jeremy McComish, Victorian-based Allergist and Immunologist, spoke about emerging treatments targeting mast cells and mediators.

I think I have MCAS. What do I do?

Sunday, 26 June 2022, 4–5 pm AEST
Professor Pete Smith, one of Australia’s leading allergists, presented on MCAS – what it is, diagnosis and treatments.

Managing surgical procedures and anaesthesia

Saturday, 23 April 2022, 4–5 pm AEST
Professor Connie Katelaris MBBS PhD FRACP presented on managing surgical procedures and anaesthesia with a mast cell disease.

COVID-19 and Mast Cell Diseases: A patient’s perspective

Saturday, 26 February 2022, 4–5 pm AEDT (in recognition of Rare Disease Day on 28.2)
David Mayne, TAMS Chair, and a patient with CM/ISM, shared the latest research and his personal journey with mast cell disease and COVID-19.

2021 Awareness Day education and support webinar

Saturday, 23 October 2021, 4–5 pm AEDT (in recognition of Mast Cell Awareness Day on 20.10)

  • Mast Cell Diseases 101 with Dr Celia Zubrinich, Consultant Physician with a special interest in all aspects of allergy.
  • Coping with a chronic illness with Antonia Taylor, Coach, Counsellor and founding Director of Envision Services.

Did you miss out on the above webinars? Become a TAMS member to access the recordings.

TAMS online support meetings

We host regular Zoom support groups for members. Put these dates on your calendar.

 

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