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Identifying International Patient Needs presentation

Identifying International Patient Needs presentation

As part of International Mastocytosis & Mast Cell Awareness Day, The Mast Cell Disease Society, Inc. (TMS) is sharing this presentation from its 2022 Patient & Provider Symposium, which was held last weekend. The core author group of the recently published...

Say what you need… global campaign

Say what you need… global campaign

The 5th annual International Mastocytosis & Mast Cell Diseases Awareness Day is on 20 October. This Awareness Day, patient advocacy groups around the world are encouraging Mastocytosis and Mast Cell Diseases patients to "Say what you need...". Download the blank...

Dealing with stress to soothe the nervous system

Dealing with stress to soothe the nervous system

​By Sue Dickinson – TAMS Support Chair Over the past few decades, much has been said/written about the impact of stress on our well-being and our immune system. Not rocket science right? However, it is often very difficult to integrate this information when we are in...

Why purple?

Why purple?

When mast cells, usually from bone marrow, skin, and GI biopsies, are exposed to a special dye in pathology labs the granules of the mast cell or their cartilage matrix shows up in a distinctive purple colour. Once mast cells are highlighted in purple, pathologists...

Explaining Adult Onset Cutaneous Mastocytosis

Explaining Adult Onset Cutaneous Mastocytosis

TAMS is developing a new information series to be shared on the TAMS website and via our Facebook page and patient group. It will detail the various diagnoses of Mast Cell Disease. Our second Explaining Mast Cell Disease info sheet and post focus on Adult Onset...

New ‘Explaining Mast Cell Disease’ series

New ‘Explaining Mast Cell Disease’ series

TAMS is developing a new information series to be shared on the TAMS website and via our Facebook page and patient group. It will detail the various diagnoses of Mast Cell Disease. We start with paediatric cutaneous mastocytosis. Paediatric cutaneous mastocytosis is...

Awareness Day 2020 media coverage

Awareness Day 2020 media coverage

TAMS and our 2020 #SpotOurSpot campaign featured in the following publications: Glasshouse to shine purple for mast cell disease awareness, Port Macquarie News Raising awareness of Mastocytosis, Mast Cell Diseases, Canberra Weekly Canberra sports purple spots for...

#SpotOurSpots for Mastocytosis and MCAS is lighting up Australia

#SpotOurSpots for Mastocytosis and MCAS is lighting up Australia

On October 20, landmarks and venues across Australia are lighting up to raise awareness of Mastocytosis and Mast Cell Diseases – a broad family of diseases that can be life threatening and very often severely debilitating. October 20 is the third annual International...

‘I look ok’ – A poem by Andrew Ballard

‘I look ok’ – A poem by Andrew Ballard

'I look ok' - A poem by Andrew Ballard I look ok Inwardly groansMy bag of bonesPounding on my SconeDaylight has come Post nasal dripHanging for first sip of teaWhat ran over meFeel like a tip Abnormal you sayNope this is normalEveryday my body's in disarray How to...

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