Say what you need… global campaign
The 5th annual International Mastocytosis & Mast Cell Diseases Awareness Day is on 20 October. This Awareness Day, patient advocacy groups around the world are encouraging Mastocytosis and Mast Cell Diseases patients to "Say what you need...". Download the blank...
TAMS presents virtually at 2022 European Competence Network on Mastocytosis (ECNM)
TAMS was one of four patient advocacy groups (PAGs) globally invited to present to The European Competence Network on Mastocytosis (ECNM) at their annual conference in September. The conference was a hybrid event held in Basil Switzerland and online. All PAGs attended...
Read our new article in The Journal of Allergy and Clinical Immunology: In Practice
Read our new article Mast Cell Diseases in Practice and Research: Issues and Perspectives Raised by Patients and Their Recommendations to the Scientific Community and Beyond in The Journal of Allergy and Clinical Immunology: In Practice, an official publication of the...
Dealing with stress to soothe the nervous system
By Sue Dickinson – TAMS Support Chair Over the past few decades, much has been said/written about the impact of stress on our well-being and our immune system. Not rocket science right? However, it is often very difficult to integrate this information when we are in...
103 landmarks and buildings light up for mastocytosis and mast cell diseases
On October 20 landmarks and venues across Australia will light up purple to raise awareness of Mastocytosis and Mast Cell Diseases – a broad family of rare diseases that can be life threatening and are very often severely debilitating. 20 October 2021 marks the fourth...
Why purple?
When mast cells, usually from bone marrow, skin, and GI biopsies, are exposed to a special dye in pathology labs the granules of the mast cell or their cartilage matrix shows up in a distinctive purple colour. Once mast cells are highlighted in purple, pathologists...
