2024 ECNM patient roundtable discussion
Thanks to a generous corporate donation, The Australasian Mastocytosis Society's Chair, David Mayne, traveled to Berlin for the European Competence Network on Mastocytosis (ECNM) annual meeting held in September 2024. It was an incredible opportunity to network with...
Call for participation: Rare Disease Day 2025 – How can people support you?
Rare Disease Day is celebrated annually on the last day of February, falling on Friday, 28 February 2025. With over 300 million people worldwide living with one or more of 7000+ rare conditions, this year’s focus is on ‘More than you can imagine’, highlighting the...
Key highlights from the ASCIA 2024 Conference
David Mayne, TAMS Chair, attended the ASCIA 2024 Conference in person, proudly representing TAMS and the broader mast cell disorder community. His participation highlighted TAMS’ commitment to staying at the forefront of research and developments in allergy and...
TAMS committee update
Thank you Sue We would like to extend our appreciation to Sue Dickinson for her valuable contributions to TAMS during its formative years. Sue joined the committee in April 2012, shortly after our first TAMS Conference in Port Macquarie, and played a significant role...
TAMS Special General Meeting
Join The Australasian Mastocytosis Society's (TAMS) to attend our upcoming Special General Meeting. TAMS committee has called this meeting to vote on proposed amendments to TAMS' Constitution. Date: Wednesday, 9 October 2024 Time: 5:30 pm AEDT Place: To...
Medication shortages
Please see below the shortage alerts regarding Famotidine, Nizatidine and Omalizumab. Famotidine and Nizatidine Famotidine and Nizatidine are both listed on the Therapeutic Goods Administration (TGA) Medicine Shortage Reports Database (the Database). All Famotidine is...
Patient profiles: Spotlighting Mast Cell Diseases year-round
The Australasian Mastocytosis Society invites you to participate in our upcoming series of patient profiles. By completing a patient profile in the linked survey, you can share valuable insights into living with a mast cell disease. Sharing your lived experience will...
TGA Medicines Repurposing Program: Expanding access to Omalizumab for mast cell disorders
The Therapeutic Goods Administration’s (TGA) Medicines Repurposing Program (MRP) aims to improve patient access to medicines in Australia by identifying new therapeutic uses for existing medicines and supporting sponsors in seeking the regulatory approval and subsidy...
Good Grief Part 1: Wrap up
Join us for Part 2 on 9 DecPhoto by Aleksandr Ledogorov on UnsplashAt our Support meeting on Sunday, 24 November, it was acknowledged that our emotional state can have an effect on our illness, and vice versa. This can be positive or negative. Some members felt that...
Good Grief
Part 1: Anatomy and physiology of griefIllustration: Charlie Brown by leonardocharra (Creative Commons)Grief is a complex emotional response to loss, and its anatomy and physiology involve a combination of psychological, neurological and physiological processes....
Mental Olympics: TAMS June Support Meeting wrap-up
At our June Support meeting on 24 June 2023, we discussed the challenges faced with management of our chronic illness, using the analogy of athletes preparing for the Olympics. In order to progress, an athlete can be faced with setbacks as they commence training for...
Mental Olympics: June 2023 online support group
Living with a chronic illness can feel like we are always at the beginning, both physically and mentally. No matter how many times we think we have prepared for a flare of our illness, it can seem like we have achieved little progress or improvement in the management...
A dollar makes a difference for MCDs
Did you know that you can support TAMS with just $1 on PayPal? Select TAMS as your “favourite charity” on PayPal and give $1 at checkout when making regular PayPal payments without any ongoing commitments, automatic deductions or fees. You and anyone else who joins...
Interview with Professor Katelaris
TAMS Chair David Mayne recently interviewed Professor Connie Katelaris. In this interview, David Mayne asks Dr Katelaris some of the most common patient questions related to MCD, including what tests a GP can do to support a patient under investigation for a mast cell...
The curse of invisibility: Wrap-up
By Sue Dickinson – TAMS Support Chair At our most recent meeting on Saturday, 25 March 2023, a group of nine members engaged in a positive discussion about the impact of our invisible illness upon ourselves and those around us. Our session was longer than...















