Identifying International Patient Needs presentation
As part of International Mastocytosis & Mast Cell Awareness Day, The Mast Cell Disease Society, Inc. (TMS) is sharing this presentation from its 2022 Patient & Provider Symposium, which was held last weekend. The core author group of the recently published...
SpotOurSpots for Mastocytosis and Mast Cell Diseases is lighting up Australia and New Zealand
20 October 2022 marks the 5th International Mastocytosis & Mast Cell Diseases Awareness Day. On 20 October over 150 landmarks and venues across Australia and New Zealand will light up purple to raise awareness of Mastocytosis and Mast Cell Diseases – a broad...
Access to medical services, prescriptions, support services, and disaster payments
Accessing pharmaceuticals If you’ve been affected by the floods and can’t access your medicines, a pharmacist can contact your doctor/s by phone to make sure you can get the prescription medicines you need, even if your script has been lost or damaged by the floods....
Say what you need… global campaign
The 5th annual International Mastocytosis & Mast Cell Diseases Awareness Day is on 20 October. This Awareness Day, patient advocacy groups around the world are encouraging Mastocytosis and Mast Cell Diseases patients to "Say what you need...". Download the blank...
TAMS presents virtually at 2022 European Competence Network on Mastocytosis (ECNM)
TAMS was one of four patient advocacy groups (PAGs) globally invited to present to The European Competence Network on Mastocytosis (ECNM) at their annual conference in September. The conference was a hybrid event held in Basil Switzerland and online. All PAGs attended...
Read our new article in The Journal of Allergy and Clinical Immunology: In Practice
Read our new article Mast Cell Diseases in Practice and Research: Issues and Perspectives Raised by Patients and Their Recommendations to the Scientific Community and Beyond in The Journal of Allergy and Clinical Immunology: In Practice, an official publication of the...
Dealing with stress to soothe the nervous system
By Sue Dickinson – TAMS Support Chair Over the past few decades, much has been said/written about the impact of stress on our well-being and our immune system. Not rocket science right? However, it is often very difficult to integrate this information when we are in...
103 landmarks and buildings light up for mastocytosis and mast cell diseases
On October 20 landmarks and venues across Australia will light up purple to raise awareness of Mastocytosis and Mast Cell Diseases – a broad family of rare diseases that can be life threatening and are very often severely debilitating. 20 October 2021 marks the fourth...
Why purple?
When mast cells, usually from bone marrow, skin, and GI biopsies, are exposed to a special dye in pathology labs the granules of the mast cell or their cartilage matrix shows up in a distinctive purple colour. Once mast cells are highlighted in purple, pathologists...
Explaining Adult Onset Cutaneous Mastocytosis
TAMS is developing a new information series to be shared on the TAMS website and via our Facebook page and patient group. It will detail the various diagnoses of Mast Cell Disease. Our second Explaining Mast Cell Disease info sheet and post focus on Adult Onset...
Depression, anxiety, stress, and poor quality of life are associated with Mast Cell Disorder
Depression, anxiety, stress, and poor quality of life are associated with Mast Cell Disorder. What is your experience? Please share in the Mast Cell Disorder and Quality of Life study. A psychology PhD research team at Griffith University in Australia is conducting a...
New ‘Explaining Mast Cell Disease’ series
TAMS is developing a new information series to be shared on the TAMS website and via our Facebook page and patient group. It will detail the various diagnoses of Mast Cell Disease. We start with paediatric cutaneous mastocytosis. Paediatric cutaneous mastocytosis is...
Awareness Day 2020 media coverage
TAMS and our 2020 #SpotOurSpot campaign featured in the following publications: Glasshouse to shine purple for mast cell disease awareness, Port Macquarie News Raising awareness of Mastocytosis, Mast Cell Diseases, Canberra Weekly Canberra sports purple spots for...
#SpotOurSpots for Mastocytosis and MCAS is lighting up Australia
On October 20, landmarks and venues across Australia are lighting up to raise awareness of Mastocytosis and Mast Cell Diseases – a broad family of diseases that can be life threatening and very often severely debilitating. October 20 is the third annual International...
‘I look ok’ – A poem by Andrew Ballard
'I look ok' - A poem by Andrew Ballard I look ok Inwardly groansMy bag of bonesPounding on my SconeDaylight has come Post nasal dripHanging for first sip of teaWhat ran over meFeel like a tip Abnormal you sayNope this is normalEveryday my body's in disarray How to...
