Welcome to TAMS’s dedicated page for carers supporting individuals with mast cell diseases (MCDs).
Caring for someone with an MCD can be demanding and challenging, requiring dedication, patience and compassion.
As part of TAMS’ commitment to supporting all individuals affected by MCDs, we’ve compiled resources specifically for carers. These resources aim to provide easy access to assistance, including personal and psychological support, ensuring carers can maintain their wellbeing while continuing to provide invaluable help to their loved ones.
If you are a carer and know of a resource that you think could benefit others, please email us your suggestions.
Australian carer resources
Carer Gateway provides a range of support services for carers, including information, counselling, respite care and financial assistance.
Carers Australia provides support, advocacy and resources for carers, including those caring for a spouse.
MyTime provides a space where parents and carers of children with disability, chronic illness and other special needs, can feel understood, share ideas and access quality information and resources. When attending local MyTime group sessions carers will be supported with skilled guidance from trained facilitators.
Young Carers Network provides unpaid carers up to 25 years of age assistance with practical issues, support and resources including mindfulness activities, available on demand. They also assist with financial issues via the Young Carers Bursary Program.
Young Carers Connect provides a safe online space for young carers aged 12–25 years to engage with each other, find support, share stories, play games and have a laugh. Sessions run fortnightly in two age groups, 12–17 years and 18–25 years. Facilitated by Relationships Australia Canberra and Region in partnership with Carers Australia.
Carers Support provides services for carers to address their needs and wants. Offering many online resources on topics such as how to share the load as a carer, how to plan for the future, how to engage in self-care and much more.
The Commonwealth Home Support Programme (CHSP) is an entry-level in-home aged care support program that helps people aged 65 years and over, Aboriginal and Torres Strait Islander peoples aged 50 years and over, and people aged 50 years and over who are experiencing, or at risk of, homelessness. It may be suitable for people who need some assistance with everyday tasks to support their health and wellbeing, and it also includes respite services to give carers a break.
Aotearoa New Zealand carer resources
Carers New Zealand provide a wide variety of support and services to family carers, including advice and learning programs, assistance for carers who also work, opportunities to connect with other carers at meetups, planning guides, important resources on the need to take breaks, resources for young carers and much more.
Parent to Parent New Zealand provides support, information and connection for parents and carers of children with disabilities or health impairments. They also offer a number of supports for siblings (child – adult) to help them overcome challenges and in their own unique family environment.
Rare Disorders NZ provides resources for patients and carers of children with rare conditions, including a written guide for parents and caregivers to help with navigating the path of caring for a child with a rare disorder in Aotearoa New Zealand.
Skylight is a New Zealand NFP available to help people through difficult times. Their website offers resources for parents and primary caregivers of chronically ill children.
Amaze offers information for individuals on the autism spectrum, as well as caregivers supporting children on the spectrum. Information is available on the diagnosis process, behaviour support services, finding an appropriate therapist, social scripts, and resources for teenagers and how to support them with issues such as romantic relationships, puberty and sexuality.
Carer Support Subsidy
Te Whatu Ora – Health New Zealand provides full-time carers, including those who care for individuals with chronic illness, with a subsidy based on individual assessment, which helps carers take some time out for themselves. It provides reimbursement for some of the costs of care and support for the recipient of care, while carers have a break (respite).
Photo by National Cancer Institute on Unsplash
