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SUPPORT GROUPS

TAMS Online Support Groups

Connect with others with a mast cell disease through our free Zoom support groups for members and potential members.

Living with a rare disease can be isolating and challenging due to the limited understanding of the condition within the general population and even the medical community. Through participation in our support group, you’ll discover a secure and empathetic environment where you can connect with fellow members who understand the challenges, symptoms and uncertainties that come with these conditions.

Run by TAMS Support Chair Sue Dickinson, our TAMS Zoom support groups are theme-based. Registration links are provided in the lead-up via our member and public newsletters and our Facebook page.

Come along and safely share, listen and vent your thoughts and experiences.

 

TAMS Member Support and Education in 2024

Thanks to all who completed our survey about a potential conference this year. We greatly appreciate your valuable feedback.

After weighing all your feedback, we’ve decided that an in-person event isn’t on the cards for 2024. We get it – health concerns, travel costs, rising COVID-19 cases and the general cost of living are real considerations. So, we’re sticking with our online program for this year. We also heard you about the full-day online sessions being a bit much, so we’re mixing it up with several shorter online education events throughout the year. We might revisit face-to-face gatherings later in the year, so stay tuned for updates.

We will announce our upcoming education program soon.

We will be holding our first online support group from 4 – 5.30 pm on Saturday, 2 March. It’s your chance to let us know what you want from our support program this year – both formally and informally.

Register to attend our 2 March, and brainstorm the evolution of our TAMS support program in 2024. Looking forward to connecting with you all!

Additional 2024 dates will be announced after our March support meeting.

We also host regular Education Zoom webinars for members. Dates will be announced soon.

 

Facebook support groups

Do you suffer from Mastocytosis or MCAS? Join the Mastocytosis and Mast Cell Diseases Australasia Patient Support Group.

Do you suffer from Advanced Mastocytosis? Apply to join the TAMS Advanced Systemic Mastocytosis Australasia Patient Support Group.

Carers are invited to join the Mastocytosis and Mast Cell Diseases Australasia Carer Support Group.

Please be aware that our Facebook groups are independent of TAMS membership, and anyone with mastocytosis, MCAS or HaT and parents of 0-15-year-olds with these conditions are welcome to apply to join the Facebook Patients Group. Carers and parents can apply to join our Carer Support Group. 

Please note, our Facebook Groups are administered by TAMS, a registered not-for-profit group. Our volunteer committee members are the group Admins. Please note that rules and guidelines are in place to ensure a safe online space. 

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